In September 2008, just before her 13th birthday, Grace Hopkins was diagnosed with FA, a degenerative neurological disease for which there is...

The Friedreich’s Ataxia Research Alliance (FARA) is a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to the pursuit of...

Matt is a 34-year-old wonderful young man from Johnston, RI who was diagnosed with Friedreich's Ataxia (FA) more than 21 years ago...

MATT'S Story

 


GRAce's Story

 


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